The Importance of a Guide Dog

The Importance of a Guide Dog.

Guide dogs logo white silhouette man walking with white silhouette dog

For as long as we can remember dogs have been mans best friend, so it makes sense that one day these fun, loveable and loyal canines would become a vital and supporting role for people with disabilities.

Guide Dogs was founded in 1931 by Murial Crooke and Rosamond Bond. These women organised the training of the first 4 Guide dogs in Merseyside, Liverpool UK.
Since their humble beginnings Guide Dogs has grown expansively and is the largest breeding collection for people with visual impairments.

Becoming a Guide Dog is extensive and very specific.
Mate selection for breeding a Guide Dog is of great importance. The pups that are born need to be good natured, hardworking, intelligent and not scared of loud environments.
most Guide Dogs are a cross of: Golden Retrievers, Labradors and German Shepards’. In cases where the visually impaired person has allergies or other needs dogs such as Poodles are cross bred.

A Guide Dogs working life is around 8 years and the cost of raising, training and caring for the dog is on average £50,000.

Lenny sitting on a bench with Dylan a black and brown german shepard laying at his feet

 
The Stages of a Guide Dog.

Once born each litter is named by a letter in the alphabet.
For example a litter with the letter L could be named: Luna, Liza, Leo, Luke…
The only letter of the alphabet that is not used is the letter X.
6-8 Weeks.
The puppies are vaccinated and ready to meet their puppy walkers.
A puppy walker is someone who assists the pup on it’s training to becoming a Guide Dog this includes walking the pups, start basic training and and give simple commands.

it’s imperative that they are brought up properly.
Volunteer puppy walkers introduce the pups to the sights, sounds and smells of the world.
The puppy walkers will take the pups through busy streets, into shops, on buses and trains.

The puppy walker will also teach the pup to walk ahead on the leash as this is how they will walk when guiding a blind or visually impaired person.
They will also teach them to obey simple commands such as sit, stay, down and come.

1 Year Old Guide Dogs.

The puppy walker returns the pup back to Guide Dogs training school to begin their advanced training.

The skills the young dogs learn to assist a blind or visually impaired are:

  • Walking in a straight line in the centre of the pavement unless there is an obstacle.
  • Not to turn corners unless told to do so by the handler.
  • To stop at kerbs and wait for the command to cross the road, or, to turn left or right.
  • Learn to judge height and width so that it’s handler does not bump their head or shoulder.

With each command a verbal, physical and visual command is given to the young dog. These signals are given to the dog to understand what they should do next. All Guide Dogs are trained to be on the handlers left hand side.When a Guide Dog is in training it will always wear a brown harness, they do not wear a white harness until they have qualified.

As you can see the training is rigorous, but it has to be. A human is putting a lot of trust into it’s companion,a companion that cannot speak.
Sadly not all of the puppies make the grade to become a Guide Dog, these puppies usually go on to train as a Police Dog or other important roles.

Matching the correct dog with the correct owner takes a lot of skill and experience on the part of Guide Dogs.The owners height, length of stride and lifestyle will all contribute to the type of Guide Dog they are matched with.

The Guide Dog and owner spend around 4 weeks intensely training together, 2 weeks of that will be at a training centre set up specifically so that there are no distractions to either the dog or owner. But this is mostly for the owners benefit.
Once they have successfully qualified, the visually impaired person signs a contract, hands over 50p and the Dog is given it’s white harness.
I have a number of friends who have Guide Dogs, and over time I have learnt a lot about the expectations of a Guide Dog and the bond between the two once they are fully qualified and living together at home.

I asked a very good friend of mind if he wouldn’t mind being interviewed to give a more in-depth insight into the partnership between Guide Dog and it’s owner.

Black and brown dylan sitting next to his black and white dog pal




Interview Questions.

What does having a guide dog mean to you?
Independence and the freedom to go out and do things. The convenience of going places in a quicker time.

Can you explain the relationship that you have with Dylan?

We are a solid partnership; he is pilot navigator, and I give him all the instructions.
He gets me from a to be safely: avoiding potholes, people, street furniture and what not.

What was your life like before having a guide dog?

I was lacking in confidence,; I would only go out if it was necessary,.
I would do most things in the company of others because I refused to use a cane for a while. This certainly made things more tricky!

What is the greatest benefit, in your opinion, of having a guide dog?

The partnership you get from having a Guide Dog and the confidence it invokes within you.
Having a constant companion is awesome, and, it’s been a great excuse to meet and interact with all types of people

Have you ever faced any negative feedback having a Guide Dog?

Yes, the public can be frustrating sometimes. Not understanding that my Guide Dog is working and interrupting or distracting him.
There was one incident where my first guide dog Jasper and I were about to cross the road, when suddenly he stopped abruptly and I nearly fell over the back of him. It was a man who had grabbed Jasper between his hands and started rubbing him! When I said to the guy “excuse me what are you doing?”
His response was: “it’s okay mate!”
Let’s just say the guy felt the sharp end of my tongue! I’m a lot calmer than I used to be with the public, but that day I did show my anger, hopefully it has taught him never to interrupt a working Guide Dog again!
Unfortunately that isn’t quite the end of the story… Because he had distracted Jasper so much, the dog then decided to cross at a green light, before I had given the command.
I had to pull Jasper back onto the curb and tell him off.

What are five pieces of advice you would like to give the public about having a Guide Dog, especially when he is out and working?

•First and foremost never interrupt the handler or dog when it is on harness, the dog is working and to distract them could cause problems, or even accidents like I explained above.

•Treat the handler as a person, and with respect: ask if you can pet the dog.
Do not assume it is automatically ok, to pet them, just because YOU love dogs…
You wouldn’t take a baby from it’s pram and start kissing and cuddling it without the mothers permission, so do not attempt to distract or play with the dog just because you want to.

•Never give food or titbits to the dog. All Guide Dogs are fed well and each portion is measured. Giving them food will invite them to be greedy and undermine the training that Guide Dogs’ (the charity) and myself have taught them.

•Guide Dogs are normal dogs that are specially trained to listen and obey commands given to them by the handler. Such as, sit stop forward…
They are not specially made robot dogs with built in GPS. They do not know where they are going,they listen to the directions given to them by their handler.

•Please appreciate that not every person who has a Guide Dog is completely blind. A Guide Dog is an extension of the visually impaired person. He helps enhance my life and gives me more freedom, but they are not specifically bred just to be given to totally blind people.

Any funny moments?

Quite a few, but here are two of my favourites.
Jasper, my first guide dog was having a free run in the park and had been bounding about in The muddy lake when a lady in a white skirt called to him. He went over and jumped up at her… Surprise surprise she had dirty marks down her white skirt!

Dylan my new Guide Dog had been out for a free run with my friend. When they came back he apologised profusely… Dylan had spotted a baby rabbit, chased it down, caught it, and then decided to eat it!
I did think he was going to be ill, but thankfully not! He definitely didn’t have any dinner that night!

Any advice you would like to give to a person starting out with their first Guide Dog?

•Keep up the obedience training that Guide Dogs teach you… It’s really invaluable to make sure your dog is doing the best job they can when on harness.

•Don’t be afraid to say no to the general public: it’s not okay for them to interfere with you or your Guide Dog and it is okay to discipline them when you are training them. The public like to interfere, but you know what you have been taught and stick to that.

•Free runs are occasions for you to bond with your guide dog. Show them all the love and affection and attention they need, it helps to build a stronger bond as well as letting them have a chance to be a normal dog.




Disability Q&A #14

Hello everyone and welcome to a new year and a continuation of my #DisabilityQ&A series!

To kickstart the new year we have Amelia, she is full of fun positivity and most importantly honesty! I’m very lucky to call her my friend! I hope you love her interview as much as I do!

Over to you Amelia…

Tell me about yourself:

Hi I’m Amelia Khan, 26 and I live in tehe sunny south (one can only dream)
What is your job?
I work in the Charity Sector

In my spare time I enjoy keeping fit, having me time, socialising and following technology stuff.

Now we know the basics, can we learn a bit more about you?

What is the medical reason you have a disability? i’m Visually impaired, my condition is called Peter’s Anomaly
Have you had your Visual impairment / disability from birth? Yes.

Which terminology do you prefer?

Blind – but generally not amazingly fussed.

Do you have a cane, Guide Dog or neither?
Cane
If you could extinguish your disability, would you?

No, my disability has helped me to be the person that I am today. I come from a culture where people with disabilities are made to feel inadequate – people see the disability rather than the ability. This is reflected in the way that I am perceived by people within my own community. But My disability set me apart from their thinking, as I was singled out by them. Therefore, I am more open minded, don’t judge others as easily as they do, and respect people for who they are, as apposed to whether they have a full working body. But, overall, it has shaped my outlook on life and has encouraged me to push boundaries and challenge stereotypes.

For those who do not know much about your VI what can you see?

Nothing… but my brain does try to give me visual representations of my surroundings based on what people tell me and what I think is around me. However, my brain does decide to branch out sometimes and gives me some exciting colours in the form of random shapes (also known as floaters)

How has your disability affected you?
*Socially – I find it hard to meet knew people, get out as much as I would like to, and starting a conversation with people for the first time due to lack of eye contact and being wary of how they might perceive me.
*physically – I am not as active as I used to be, but slowly working on that one. My eye condition means that my eyes look smaller than other people’s, but thats no bother cause I still look hot 🙂
*Mentally – since losing my remaining vision, I have to really battle with myself to try new things, stop fearing the worst possible scenarios, I try and come across as more confident than I actually feel at times, which then makes me more anxious because I am trying to hide the fact that I am afraid/not comfortable with the situation.

Do you think your disability has made you who you are today?

Yes – people see disability as a limitation, so my desire to prove people wrong, this has made me determined to achieve and push myself to my limits even if it is hard initially, but it has definitely made me a stronger and confident person.

Is there a particular question you get asked often because of your disability?

How do you choose your clothes – I am someone who likes to look presentable, so I have a secret system to aid me in this task. It obviously works because everyone is amazed at how me as a totally blind person can coordinate my hijab, top, trousers and shoes.

What are the positives of having a disability?

Jumping cues, especially at train stations, not waiting for the ticket barriers, train staff ensuring you get a seat, people having little expectations of you, so no pressure to live to other people’s standards (of course that doesn’t mean that you should not try to be the best that you can), the funny reactions I get when walking with my cane – either people jumping to avoid me, a group of people parting like the sea or someone just tripping over my cane as they were not looking where they were walking.

What are the negatives of having a disability?

When people make assumptions about what you cannot/can do. When people talk to your companion rather than you. When people talk to you in a tone that makes you feel like a 2 year old. Having to deal with the annoying DWP no matter if you are unemployed (on ESA) or in work (using Access to Work),

What would you say is a difficulty for you being VI / disabled?

The time it takes to complete simple tasks such as making a cup of tea, or making toast, or walking from A to B.
As a person with a disability, what are the things you face on a daily / weekly basis that frustrate you?
*In your home – finding my stuff that has been moved without my knowledge,
*outside your home – having to navigate street furniture, staring people and badly parked cars.

Are there any tips or tricks you use in daily life you’d like to pass on to another VI/ disabled person?

*Keeping socks paired in the washing machine? – Maybe use pegs/hooks to keep them together.

*Colour coordinating your clothes – either wear black trousers with a coloured top – or the other way round. Yes, colour detectors do exist but I don’t find them amazingly reliable.

*Applying make up? just splash the foundation on your face and hope for the best *joke!!!* – I don’t wear make-up

Do you use Assisstive technology in your daily living?

Yes, I use a screen reader called JAWS, a Braille note to access the internet, read books and write notes.
I use a liquid leveller for making drinks. I also use apps like Google Maps when I’m out and about.
What piece of advice would you give to someone newly diagnosed? Or going through a deterioration in vision / or mobility?

Initially it seems like your world has stopped, but this is to be expected. Ensure that you get the right support and just go with your emotions. If you don’t feel that you are ready to do something such as work or going out on your own, then don’t. Try and make a list of all the positives in your life and review it. Try and reflect on what you have achieved and assess your progress, only then will you see how life can be rebuilt again.
Yes sure it will be different, but its not the end of the road. Most of all, I would say – don’t feel like you have to go it alone, get support from family/friends, professionals if required.,

Any advice you’d like to give to a person with sight / no disabilities?

Dare I say it, we are all ‘normal’ people, so next time you see a person with a disability/visual impairment, stop and say hello instead of watching them as if they are gonna explode into a million bits any second.

Did you seek out any specialist services / charities to help you and your family deal with your situation?
Yes. I have had support from local and national sight loss charities.
Where can people find you out in the world?
*Blog  https://travellingwithvision.wordpress.com/
*FaceBook https://www.facebook.com/travellingwithvision/
*Twitter – @amelias_words

Anything you’d like to add my lovely?

Life can definitely throw twists and turns which seem unbearable at times, but I wouldn’t change my sight loss for the world, as someone once wisely said “your disability doesn’t define you, but never forget how it has helped to shape you”.

❤❤ Thank you so much Amelia for taking the time to be interviewed! I love your positive attitude, and your sense of humour! It clearly shows your drive and determination to see the positive in life rather than the negative. I think we could all learn that lesson from you! Your honesty, sincerity and humour are fabulous traits to have. Thank you for sharing your story and giving some fab tips! ❤❤

If you, or anyone you know, would like to take part in my Campaign, do not hesitate to contact me on the following:
Email:SassysWorld6@gmail.com
Twitter
Facebook

If you enjoyed this interview why not check out the others in the series so far?
Interview 1
Interview 2
Interview 3
Interview 4
Interview 5
Interview 6
Interview 7
Interview 8
Interview 9
Interview 10
Interview 11
Interview 12




Festive Fun At Christmas

Picture the scene;low lighting with live Cuban music playing softly in the form of a drummer and guitarist, and me in a black and gold sparkly dress with festive earrings to boot… Yes I was at a Christmas event. but this wasn’t just any Christmas event’ this was the MK bloggers Christmas party #MKFiesta at Revolución DeCuba!

Just before we walked in I admitted to Gary I was a little nervous but excited. This was my 2nd blogging event; my 1st blogging event was somewhat overwhelming. So I wasn’t quite sure what to expect this time around.

BoConcept magazine,proper corn, stu's oven and cuban free drinks

I needn’t have worried Gary and I said hello to the girls who were already there. We deposited our jackets and grabbed a glass of Pressecco.

We chatted and mingled getting to know one another, it was great being in such good company

Before long we were piling our plates high with the scrummy food; calamari, chicken wings, shredded chili beef brisket, roasted peppers and spicy rice to name but a few delicious treats!

On the table each person was gifted 2 free drinks; Gary and I both opted for cocktails from their Christmas menu. I ordered a tropical punch and Gary ordered a a chocolatey caramel pudding punch.
I enjoyed my cocktail but sadly Gary’s drink was far too sickly sweet. We were both impressed by the food and the funky glassware our cocktails came in; I had a pineapple shaped glass and Gary’s came in a cool mason type jar!
I’m a terrible blogger, I forgot to take pictures!

Mitchel ness hat "Ducks"

There were about 15 bloggers in attendance so we broke off into smaller groups to sit down and eat. This is where I got to chat more to the lovely Formidable Joy and But First Coffee. It was great getting to know the girls a little better and chatting about all things blogging. It’s fun meeting others that share the same joys and passions as you… Time just flys by…

While we were chatting Sophie’s Suitcase came over and handed out the goody bags, and my gosh were we treated to amazing gifts and vouchers from brands!

Tub of lush hand cream, bottle of ale, £1 off stus pizza, BoConcept magazine, Ducks beenie hat, Zumba classes, ProperCorn and an open spa pass.

  • A cute and cosy hat from Mitchell and Ness
  • A bottle of Ale from MK BierGarten which Gary claimed as soon as he spotted it!
  • Gorgeous hand cream from Lush, now where can you ever go wrong with a bit of Lush?
  • A cool magazine and voucher from Bo Concept. if only I had come across this awesome company before I moved 2 years ago, I
    would have spent hours lusting over the furniture!
  • 50% off at Rush, I’m very much looking forward to booking my haircut in the new year!
  • A relaxation session at Flotation Life, Gary and I are still debating on who deserves this more..
  • Lunch for 2 at Maaya I’m a lover of Indian cuisine so I cannot wait to try this restaurant out!
  • £1 off pizza at Stu’s Oven; Gary’s favourite food is pizza, so I won’t be getting a look in there then!
  • 2 vouchers for Zumba at Fitness Milton Keynes, trying to keep up with a fitness workout when you can’t see is going to be entertaining at the very least!
  • A 120g packet of sweet and smokey chili flavored propercorn it was very tasty i must say!
  • A pot of mustard from Mr and Mrs Fitz, I’m genuinely excited to try this on some pork chops.
  • And not forgetting further drinks vouchers as a fab excuse for us ladies to return in the new year and enjoy a few more cocktails!

A massive shout out goes to  Revolución DeCuba for being fantastic hosts, all the fab brands who gifted us, and most importantly Sophie’s Suitcase for organising the event itself!

I hope you all have a fabulous Christmas and I look forward to the next blogger meet up!

Tub of hand cream, bottle of ale, 50% of at rush and apple and cider mustard




Much love,
Sassy x

Sorry For My Absence

I’m sorry for my absence. I’ve been contemplating writing this for a while now. But i’ve been holding back.
The reason for this is that i’ve begun overcomplicating things in my own mind.

I started this blog to share with you the rollercoaster ride that seems to be my life. I wanted to share everything from the highs to the lows hopefully attempting to show that although having a disability sucks sometimes, there’s a lot in life for us all to be grateful for, and in my case, find the funny side of it all.

As more time went on I realised I didn’t just want to share my story but share other people’s stories too.
I wanted to be a platform for people to learn something new, become more open minded and even to be a resource to for those who may be seeking it.

I have a thirst for knowledge and a passion to educate and support others.I put my energy into creating content that I hoped would be of use to others, and put my own thoughts and stories on the back burner, until I thought they would be of use.
I’m open and honest on this blog and fingers crossed it’s somewhat entertaining…

But i’ve been overcomplicating things… I wanted my blog to be a resource, a platform, a network and a home to share it all.
I started my campaigns in the hopes of creating a community. I wanted to be inclusive of everyone; fromAutism to arthritis or cystic fibrosis to depression, right through to those that care for people with a disability.

My #DisabilityQ&A took off, and I was excited to be sharing peoples’ stories, and i’m extremely grateful for those of you who got involved!

I tried my best to create the same enthusiasm with my other campaigns, as well as trying to encourage those with any #Disability to get on board with no avail.
I was disheartened somewhat but I had a million and one other ideas for blog posts that I thought would be interesting and useful. So I kept going.

Blogging not only became my passion, but it became an obsession. If I wasn’t writing content I was thinking of what material to use and researched it to make sure my facts were correct.
I joined in fabulous linkys, I had a tribe and I spent all my spare time talking to bloggers, reading their awesome blogs and promoting as much as I could.

I was having the best time, I was making new friends around the globe, learning new things and achieving what I hoped with my little corner of the internet.

But then I began to overcomplicate everything.

I was in a tribe that were all on a similar level to each other, constantly supporting one another and giving continuous encouragement and praise.
It was fantastic, I couldn’t have asked for a more supportive and kind bunch of people to be around.

But the further I delved into the blogging world the more I realised how technical things got.
I was knee deep in blog posts or conversations that revolved around stats, branding and monitisation.

I became interested in raising my stats; the prospect of working with brands who could help further my campaigns, give my blog exposure and in turn become the platform I hoped it could be.I thought I could really make a difference; doing reviews, giving talks and getting more people to share their trials and triumphs.

I was eager and excited at the prospect of doing something good: exposing other campaigners and my little blog being recognised for creating a community of support and resources.

So I joined blogging groups, blogging platforms that would connect brands with bloggers and even emailed PR’s and organisations to introduce myself and explained my ambitions for the blog.

And that’s where things became complicated.

I quickly realised that I was too niche for brands, PR’s and even organisations to want to work with me.
Review opportunities came in the form of fashion, kids accessories, beauty or luxury jewellery.
These reviews were not quite what I was looking for, and the odd time I thought I could work with a brand to review things from a disability standpoint I was stopped at the first hurdle.
“5000 followers minimum to apply”

I appreciate each and every follower and reader of my blog.I want people to follow me because they have a genuine interest in my blog and my campaigns.
I’m not a parent blogger, fashion or beauty blogger.
Although I have interest in fashion and beauty i’m not going to pretend I follow the latest trends… I have little to no knowledge of these things to even warrant blogging about them.

I was also getting nowhere with contacting PR’s/ organisations via email. The few times I was lucky to get a response I was congratulated for what I was trying to achieve but ultimately they did not have the time or budget to work with me.

At this point I was surrounded by fabulous bloggers acing it with stats, brand work and even getting paid work! I couldn’t be happier for my friends,but I found it increasingly overwhelming and at points unworthy to be in their company.

I wasn’t achieving what they were.

Even the bloggers I was reaching out to for my campaigns seemed no longer interested in joining them.

I became deflated and even at times frustrated… I was trying to make my blog into a place that was more about the community than it was about me.

Even though I had blog post ideas zooming around my mind and cluttering up my drafts; I started posting less and focused more on promoting the blogs myself and others had already taken the time to write.
After a while I slowed down on the amount of linkys I joined too.
I began to notice that unless I was one of the first people to link up, my posts I pretty much got ignored.
I used to spend hours reading and commenting on blogs and even sharing them over my social media, but the less often I shared or commented I began realising that people clearly weren’t interested in my blog.
It had become a: you scratch my back, i’ll scratch yours mentality…

Aside from the few people that genuinely enjoyed reading my blog, left me meaningful comments or shared my posts my stats dropped faster than an avalanche.

At this point I was done with spreading the blog love. I put 100% effort into my posts, and I wanted nothing more than to educate people who had little to no knowledge of disabilities and be a place for those with disabilities to find support and even new ideas.

By the time I had been in hospital for a week: after breaking my leg I wasn’t even sure if I should blog about it.
I’d become so wrapped up in wanting to be a space to share knowledge, ideas and experiences I thought people wouldn’t be interested in hearing my holiday dramas.

I began my blog to share my story, yet in my mind I feel it’s become something bigger than that.
I guess that it’s because I wonder often, what makes me so special that I should spend day after day talking about myself.
What is it that makes me more interesting than any other blind or disabled person out there?

And the answer is, there isn’t.

I’m just another blind person talking about their disability.

But it’s my space.

If my little corner of the internet can educate one person or give another disabled person a someone to relate to then i’ve done my job.

Stats, brands and opportunities are great, but this is no longer my focus.
Of course if a worthwhile opportunity were to come knocking, I would grab it with both hands.
But most importantly i’m grateful for my lot, and anything else is a bonus.

“Comparison is the thief of joy.”
– Theodore Roosevelt.

Blind Girl Hacks: Beauty Essentials

Blind Girl Hacks: Beauty Essentials

I’m definitely no beauty expert but I believe that any girl that wants to get into a good beauty regime should have these in their arsenal.
I feel it’s important to share this with you as it is going to be a good base for my next few posts 🙂
If you are visually impaired or blind and want to start experimenting with make up I hope these posts will be of use to you!

Before we begin, always make sure that you exfoliate and cleanse your face before applying any products.

🙂

Moisturiser

It’s important that everyone uses moisturiser, it keeps your skin soft, supple and hydrated.
Find a moisturiser that works with your skin type; normal, dry, sensitive, oily or combination.
Doing this Not only is good for the skin, but because moisturiser is the base for anything else beauty-wise going on your face.

Vaseline

Not only is vaseline great for keeping your lips moisturised, but it also has many other uses as a beauty product.
Which I will go into further in another post. 🙂

Make up brushes

There are several make up brush brands out there, and each make up brush has a different purpose.
Although, it’s not necessary for you to get lots of make up brushes if you are just starting out. But it is important to invest in 1 or 2 good quality brushes that can assist you with make up practice.
I will be creating a separate post of the different types of make up brushes and their specific uses.

A selection of makeup brushes large on the left and small on the right

Eyelash curlers

Eyelash curlers are a big must! in the make up world; Whether you have short or long lashes, using them will open your eyes up and make them look bigger and brighter

Silver eyelash curler


Eyebrow brush

This is another big love in the beauty industry. They are great for tidying your brows as well as shaping them before applying brow liner or mascara.
Eyebrow brushes are also great for separating eyelashes. It does this by individualising your lashes before applying mascara, and handy for running through the lashes after application to remove any clumping of the eyelashes.

EyePencil sharpener

An absolute must if you are going to be applying eye, brow or lip pencil.
They are so cheap, having 2 or 3 in your arsenal is very worthwhile.
It means you can have 1 for your make up collection. 1 for your travel bag and a spare encase either goes missing!
Tweezers
Perfect for when you want to get rid of that stray eyebrow hair, but also extremely useful for doing delicate things like applying false nails or eyelashes.

Cotton buds
There are so many brilliant uses for cotton buds:adjusting make up, correcting make up faux-pas, and brilliant for creating your own travel eyeshadows, or travel lipsticks.
You can also use them as emergency applicators. Or to create more definition.

Cotton pads

Great for removing make up nail polish and applying cream.
If you are travelling put a cotton pad on top of your powdered make up, it stops your foundation/ blusher/ bronzers cracking when luggage is being thrown around.

Make up wipes

Pretty self explanatory; used mostly for make up remover. You can also use wipes for cleaning make up bottles/ products.

Nail file

As of yet I haven’t found any other purpose for the nail file.
Keeping your nails at similar lengths is good for nail strength.
Only ever file in one direction, otherwise it damages the nails.

Nail strengthener

Sometimes your nails can become a bit brittle, especially in the Winter.
Using nail strengthener now and again will help improve the durability and length of your nails, especially in those colder months.

Nail polish remover

If you’re the type of person that wants to wear coloured nail polish, then nail polish remover is a must!
Removing nail polish before it starts chipping will not only help keep the nails in a healthier condition. Having chipped nails makes you look tacky.
Nail polish can become a bit sticky,, adding a drop or 2 to the polish will return it back to it’s original liquid consistency.
Keeping your nail polishes refrigerated will ensure longevity.

These beauty essentials can be bought at any drugstore. I would recommend doing your own research for your skin type. Buying a moisturiser that will work with you and your skin tone is important for any beauty regime.
Even though I am going to produce a post on make up brushes it is worthwhile shopping around to find the brushes that match your taste and budget.
Online stores, blogs, YouTube, magazines, reviews speaking with family and friends or going to a make up counter and asking to test the brushes yourself is always useful.
Remember, what may work for one, person may not work for others,

For those of you who are very new to make up, I am going to list drugstore products I use.. Showing You that you can still have quality products that makes you look and feel good, but you don’t have to break the bank to do it.

I am extremely fair skinned so all the products I am going to share with you are for my specific skin tone.

How do you find out your skin tone?

In places such as Boots you can have your skin tone matched for you by a specialist machine. The machine looks slightly like a handheld barcode scanner and is placed gently on your face. This will give a reading and the lady behind the counter can help you pick out make up that will match your skin tone.

Alternatively you can take someone you trust along with you and they can help you.

TIP:
Testing your foundation should always be applied on your jawline. If it blends in then you have the correct shade for your skin tone.

Depending on your specific skin tone starting out with nude/ natural colours is always a safe bet.

makeup paltte




***
Beauty products:
Foundation: Bourjois radiance reveal healthy mix in Vanilla.
BB cream: No7 Beautiful Skin BB Cream for Normal / Dry skin medium
Primer: Bourjois Air mat Vannilla.
Highlighter: Makeup Revolution London Strobe highlighter
Bronzer: Live Love makeup obsession London Bronze and shimmer light
Concealer: B.radiant BB under eye concealer
Contour Palette: Mua light/medium Bronze and sculpt
Mascara: Soap and glory Thick and Fast high definition Mascara
Eyeliner: Rimmel London exaggerate eye definer (250) Emerald sparkle
Blusher: N0 7 Pop &glow cream blush

Eye Primer: Makeup academy pro base eye primer nude
Eyeshadow Palette: MUA makeup academy Heaven and Earth eye shadow palette
Eyebrow Pencil: Avon glimmerstick Brow definer 093 medium
Lipstick Lip: Dior addict lip Glow color reviler balm 001 Pink
Lip Liner: N07 Perfect Lip pencil (20) Nude
Fix and hold Spray: MUA Makeup academy pro base fixing mist

it’s best to go for quality over quantity, and always try before you buy.

As mentioned previously, take a trusted friend or family member with you when shopping so they can give you their honest opinions as to what suits you.

Make up should be something fun you practise and experiment with, so just relax and enjoy it!
Who cares if you look like CoCo the Clown? That’s what make up wipes are for! 😉

DisabilityQ&A #13

Welcome back to my #DisabilityQ&A campaign 🙂

Today’s interview is brought to you by Holly, she has quite a social media presence and is a fantastic advocate for people with disabilities, especially visual impairment. I got in touch with her via Twitter and asked if she would like to join and she agreed 🙂

Over to you Holly;

Tell me about yourself:
Hi, I’m Holly
22
and I live in Coventry for university, but York is my home.
What is your job?
I am a student, studying Spanish at Coventry University.

What hobbies do you have?

Reading and reviewing books, writing, making videos, and travelling.

Now we know the basics, can we learn a bit more about you?

What is the medical reason you have a disability?

I have LCA (Lebers congenital amaurosis).

Have you had your Visual impairment / disability from birth?

Yes

Which terminology do you prefer: Partially Sighted, Visually Impaired, Sight
Impaired, Severely Sight Impaired or Blind?

Blind.

Do you have a cane, Guide Dog or neither?

I am a guide dog handler but was previously a cane user.

If you could extinguish your disability, would you? – If not, please
explain why.

I don’t really have a clear answer for this. I am really comfortable with
who I am, and am not sure that, if given the choice, I’d want to see. When
people go blind they require a huge amount of rehabilitation and I believe
the same would be true if I regained my vision, especially as I’ve been
blind since birth.

My blindness is part of my identity, it has shaped my choices and
experiences and I’m not sure what my life would be without it at this
point.

For those who do not know much about your VI what can you see?

I have light perception only.

How has your disability effected you?
*Socially

I think that socially there are two sides to it. On the one hand, people
feel quite uncomfortable when faced with disability and this can certainly
affect the way they behave around me. On the other hand I have met many
people through travel and attending events that I would never have come
across otherwise. In many ways I believe that blindness has given me the
opportunity to expand my world view.

*physically

Although my eye condition doesn’t affect me physically I do have joint
problems, most prominently my hips, that cause me pain. I am still able to
do almost everything, though found I wasn’t physically able to participate
fully once I joined my university’s ice skating society this year.

*Mentally

I get very tired sometimes, I suspect from sensory overload which can be
quite disruptive, but in general I am absolutely fine 🙂

Do you think your disability has made you who you are today?

I think I have had experiences that I wouldn’t have otherwise, for example
making friends with people in many different countries. This has lead me
to travel which is an amazing thing to do, and I’m glad I’m doing it now
I’m a student and have the time!

Is there a particular question you get asked often because of your
disability?

I often get asked why I’m blind/what’s wrong with me. Unless the person
has a reason for asking, for example they have become friends with me, or
they are doing so for medical purposes I usually decline to answer. I feel
like there are many more interesting things about me, and strangers should
get to know me first, rather than fixating on my disability.

What are the positives of having a disability?

Shared lived experiences with a diverse community, opportunities for
travel, creativity to find a work-around for inaccessible situations.

What are the negatives of having a disability?

You often have to work harder to access things which can be tiring and
frustrating.

What would you say is a difficulty for you being VI / disabled?

The most difficult thing for me is constantly challenging peoples
expectations of blindness. Sometimes I just want to go somewhere and not
have to educate, but at the same time I believe that education is really
powerful.

As a person with a disability, what are the things you face on a daily /
weekly
basis that frustrate you?
*outside your home

I don’t really like to be touched, especially by strangers and it
frustrates me that people will often grab me without asking. I am always
grateful to receive an offer of help, as I have the choice to accept or
decline. However when that choice is taken away from me I feel very
uncomfortable.

Are there any tips or tricks you use in daily life you’d like to pass on
to another
VI/ disabled person?
*Colour coordinating your clothes

I learnt what colours match and I pair my clothes using that knowledge.

*Applying make up?

I apply all my own makeup, and have made a video tutorial explaining how i
do this. I’m planning on making more in the future as I realise it’s an
area where we are lacking in information.

Do you use Assisstive technology in your daily living?

Yes, I use Blindsquare: this is a GPS app designed for the blind.
I also use TapTapSee: A photo app that briefly describes images that you have taken whilst in the app itself.

What piece of advice would you give to someone newly diagnosed? Or going
through a
deterioration in vision / or mobility?

Gain as many non visual skills as you can. People think when they lose
their sight that they will become helpless, but this doesn’t have to be
the case. As a blind person you can live a completely full, independent
life. But it takes time and effort. Seek out your local sensory support
service and request to receive services from them. If you know you are
going blind then practise skills under blindfold. It might be scary at
first but you’ll know you are prepared, rather than feeling like you’ve
fallen in at the deep end once you lose your vision.

Surround yourself with positive blind role models. Ask them how they cook,
or clean, or use their computers. There are no stupid questions. Challenge
your preconceptions of blindness, there are so many things you can do as a
blind person.

Any advice you’d like to give to a person with sight / no disabilities?

Never assume that a blind person can’t do something, just because they are
blind. Maybe it takes longer for them to find a specific doorway, or they
go about it a different way, but the way we navigate, or cook, or raise
children is just as valid. Always ask before jumping in to help, and be
willing to learn something new 🙂

Did you seek out any specialist services / charities to help you and your
family
deal with your situation?

Not really, but as a young adult I have attended activities ran by VICTA a number of times.




Where can people find you out in the world?
*Blog: http://catchthesewords.com
*YouTube: https://www.youtube.com/user/holly2094
*FaceBook: http://www.facebook.com/catchthesewords
*Twitter: http://www.twitter.com/catchthesewords
*Instagram: http://instagram.com/holly2094
*Email: holly@catchthesewords.com

Thank you Holly for taking part. in this series. I found your interview extremely interesting and your thoughts definitely opened my eyes to yet another perspective on disability! 🙂

Please don’t forget to follow her links, and why not share the love? Leave her a comment, we would both appreciate it!

If you, or anyone you know, would like to take part in my Campaign, do not hesitate to contact me on the following:
Email:SassysWorld6@gmail.com
Twitter
Facebook

If you enjoyed this interview why not check out the others in the series so far?
Interview 1
Interview 2
Interview 3
Interview 4
Interview 5
Interview 6
Interview 7
Interview 8
Interview 9
Interview 10
Interview 11
Interview 12




The Last Leg

“Sleep is for the weak!” I screamed as the hospital ward lights flickered on.

OK i’m joking. I was extremely tired and the combination of excruciating pain, and the constant need for the bathroom didn’t allow me any quality of sleep.

I was fed, washed and dressed waiting for the Doctor to arrive. He came over and asked all the usual Doctor questions. I explained my blood pressure cuff analogy to him and said that the pain had worsened the longer I had the cast on.
He was very friendly and supportive, even saying he would take my cast off to examine my leg. But as he did not perform the surgery, and wasn’t my Doctor, he had to wait to speak to a Consultant to see what to do.

Not too long after, my nurse came over and said he’d heard I had been uncomfortable all night, and I was complaining about the pain in my leg; to which I agreed.

“It sounds to me like your cast is too tight, let me go get some scissors and i’ll cut it off for you.”

The relief was evident on my now smiling face!

It took Rich, my nurse, a while, but he managed to cut the cast all the way down to the top of my ankle.
The relief was almost instant, my leg was on fire and heavily pulsing, but I actually managed to feel the blood pumping around my leg.

After a serious dose of medication and about half an hour later, I could feel my leg again, and not just agonising pain!

The Doctor came back not too long after and asked how the pain was, he was surprised to hear how drastically my pain scale had reduced.

“My ankle still feels really tight and sore, but it’s like my leg is able to breathe again.”

Rich, my nurse, was with me at this point and the Doctor said there and then to cut the cast off completely, the cast was obviously too tight and I should be fitted with a brace and not another cast.

You would have thought i’d just won the lottery with that comment, I was so ecstatic and relieved at the same time!

Again, as he was cutting the cast off my foot, I could feel the blood beginning to move freely around.

My entire leg was massively swollen, but the tight pain had almost fully disappeared!

Unfortunately it seemed like the surgeon, Doctors and nurses had not taken into consideration my Arthritis.
Whenever I have had a knock or bump to my body in the past, my Arthritis tends to balloon. So the combination of my accident and surgery on my leg, my joints were bound to become inflamed; specifically my knee and ankle.

And that was exactly what happened…

My leg had doubled in size… Couple that with an extremely tight cast and you’ve got a lot of pain through lack of circulation.

First brace given black with foam pads as support and Velcro straps leg is extremely bruised and swollen

I trust Doctors, after all they are the one’s who went to medical school, but i’m an advocate for no-one knows your body better than you do. I’ve lived with chronic pain since the age of 7, so I know the difference between normal pain, and abnormal pain.
*****

Leg with 17 stables closing two long cuts down the right side of the leg

With each day that came and went my leg pain decreased, I owe a special thanks to my friend Oramorph for helping me with my pain relief!

Those first few days on Oramorph were certainly interesting, I was a little woozy, mostly sleepy and my brain felt like it was trudging through sludge… it even got to the point that I declared to the occupational therapist that if nothing was going to happen over the weekend then I was just going to go home and come back Monday – until my friend kindly pointed out that this was a hospital and they weren’t just going to look after my bed for me for the weekend until I decided to return!
When my brain and tongue finally engaged, I realised how ridiculous I sounded, and we had a good laugh at my expense! ;)*****

On a more serious note I did realise just how understaffed, overworked and underpaid the Nurses and Health Care Assistants actually are.

Some patients needed more support due to their age, physical restrictions and sometimes a combination of the two. It was eye opening to watch just how demanding some patients can be, and how in turn that has a domino effect on the rest of the ward and staff.
I also noticed the lack of financial funds that the NHS have on the ground and how that is impacting on patient care.
One particular lady was brought in because she had a fall and had broken her foot… She was also very elderly and suffered with Alzheimer’s

It was heartbreaking to watch her in such distress asking where she was, what had happened, where her parents were as they would be getting worried about her and the why couldn’t she go home?
When she first arrived she had one on one support from a nurse, but that didn’t last very long as the nurse had other patients and duties to attend.
It was awful to bare witness to her on a continuous loop, that turned into hysteria when nurses couldn’t be present to talk to her and soothe her.

When the nurses weren’t around I tried to engage her in conversation as best I could, going through the motions of answering her questions. At some points she and I had conversations about her life and the odd time she was even lucid for a few minutes, so it was lovely.

However being witness to this happening over a few days on one ward I am saddened that there not are specific wards for such patients who need that extra care, support and attention.
Unfortunately this wasn’t the only patient I saw this happening with. I moved wards on Saturday around midnight and there was a similar case with another elderly lady.
Thankfully this ward was much smaller and quieter so nurses and HCA’s could give more attention to her. However, other patients such as my neighbour and myself were forgotten on several occasions.
I blame the Government for these situations, not the Doctor’s,Nurses and HCA’s on the ground. But it’s plain to see that even being in a first world country, patients still aren’t getting the full care and attention they truly need.

*****

New black brace with soft padded supports and clear plastic dial.

Leg without staples or brace on, 2 long cuts with visible staple holes and scabbing

I’m grateful to both hospitals for the care and treatment I received because without them I wouldn’t be at home recovering, trying to live a normal a life as possible as a one legged, blind short arse can 🙂

It’s not been plain sailing; lack of medication, supportive equipment, medical appointments and staples being in my leg 3 weeks longer than they should have been haven’t made my recovery easy but it’s been just over a month since my operation, so i’ve only got 8 weeks left to go!! 🙂
****
It was lovely to bump into you Becca, and meet you Eileen, i’m just sorry it was in such crappy circumstances!
I hope your recovery is going well and you’re kicking butt 😉

Much love,
Sassy x




DisabilityQ&A #12

Hello ladies and gents, thank you for returning to another interview in my #DisabilityQ&A series! 🙂

Today I am featuring an interesting lady by the name of Mandy, I’ve seen her on social media, and I thought her to be an interesting person. She got in touch with me asking to participate, and of course I said yes! She really does have a fascinating blog, so after this interview, you should really go check it out 🙂

Enough rambling from me, I shall hand the reigns over…
Tell me about yourself:
Hi I’m Mandy Ree, I’m 30
and I live in Orlando FL. I am a freelance writer and blogger for my own personal blog Legally Blind Bagged, looking for employment in the meantime.

What hobbies do you have? I’m an avid toy collector and comic con enthusiast, Disney and 80’s kids culture is my specialty. I am also working on writing my own book “Lessons From A Power Ranger” which chronicles my journey of finding my voice in self advocacy with the help of my boyfriend with cerebral palsy.

Now we know the basics, can we learn a bit more about you?

What is the medical reason you have a disability?
I was born with Austimal Recessive Ocular Albinism, a rare condition that mirrors the visual impairments of a person with Albisim but without the other physical characteristics. Hence I’m very sensitive to light and am considered legally blind, but I don’t have the white hair or the fair skin. In addition, I also suffer from PTSD and Anxiety as a result of severe bullying growing up.

Which terminology do you prefer ? Legally Blind

Do you have a cane, Guide Dog or neither? I have a cane I only bring with me when I’m unfamiliar or semi dangerous, non pedestrian friendly places.

If you could extinguish your disability, would you? – I have always wished from the time I was little up until now there was a cure for my disability. What I wouldn’t give to be able to drive. The buses in Florida are horrendous.

For those who do not know much about your VI what can you see? The best way I can explain my vision to others is as if you took a bunch of crappy pixelated camera phone pictures from 2005 and surrounded me with them. I can see people and things around me, but can’t make out details, resulting in face blindness. Which explains my awkwardness in social situations.

How has your disability effected you?
Mentally, I’m drained. Having a physical disability makes me question my worth in this world. It seems like things that should come easy like getting a job or traveling take twice as long for me to accomplish, despite having the intelligence and work ethic to do so. Thankfully I have a lot of good friends from my most recent job experience at Disney and the comic con circuit who have taken me under their wing and have come to my aid on multiple occasions. I’m not alone like I was as a kid growing up in school, so I consider myself blessed.

Do you think your disability has made you who you are today?
I have become more open minded of other people and their needs. Ever since I was a kid who was mostly in mainstream classes, I was always curous as to what goes on behind the closed doors of “that other classroom” (Special Education). In my teen years, I started to volunteer my time in the Special Education classrooms, helping to bridge the gap between them and the rest of the student body before inclusion of those with developmental disabilities was a thing. I learned a sense of empathy and understanding towards others and grew a passion to help pass those values on to other people.

Is there a particular question you get asked often because of your disability? How many fingers am I holding up? Believe me, that shit gets old real quick.




What are the positives of having a disability?
Learning that there are perks in traveling. Florida has a special identification card program that gets paired with a reduced fare bus pass, which grants me a free lifetime bus pass. I also recently learned the perks of navigating the airport by admitting my disability, like being able to get in the handicapped line at the TSA check in and priority boarding on the plane. The only perk I don’t take advantage of is the attendants with the wheelchairs that take you to the gate, I would rather have those saved for someone who needs it.

What are the negatives of having a disability? The sense of independence. My parents are extremely overprotective sometines and I often feel like I can’t prove I can do things on my own without help. Not being able to drive is also tough considering that free bus system I use takes a ridiculous amount of time to get from one point to another. When I worked for Disney, it took me 3 hours to get home as opposed to 15 minutes down the highway. Thank God for Uber.

What would you say is a difficulty for you being VI / disabled? Oddly enough I am in the gray area between disabled and non disabled, making it hard to receive services like staff to help me travel and do some hard tasks, like sewing or filling out paperwork in small print. I’m classified as too high functioning to get help and it took me forever to get on Disabilty and Medicaid. Speaking of Medicaid, getting to utilize it is difficult, since not many doctors who take it are bus friendly for me to get to. Florida lacks greatly in services and I find it appalling. Being independent is hard, it’s even harder when your income is soley your disability check, as in the case for me since I lost my job two weeks ago. I honestly don’t know how people do it. I love I’m what’s called a Right To Work state so finding jobs are hard in a state where you can technically still be discriminated against.

As a person with a disability, what are the things you face on a daily / weekly basis that frustrate you?
*In your home- Minor tasks can be a challenge, like sewing or putting together furniture. I have been learning how to cook with my mom when she visits me during the summer, but cutting vegetables and measuring are still hard on me, resulting in food that resembles something out of Kitchen Nightmares
*outside your home Traveling by the bus system. Nuff said.

Are there any tips or tricks you use in daily life you’d like to pass on to another VI/ disabled person?
To help with finances, I use a white board to help me remember what bills I need to pay. I have a folder set up on my phone that has my bill paying websites bookmarked, since paying online is easier for me to do than paper. When going to new unfamiliar places, I put Google maps on and use that to let me know what stops I need to get off at. I rely heavily on that when I travel so I always leave portable battery chargers in my bag, just in case. I also tied a lanyard wallet to my purse that holds my bus pass so I can easily find it.

Do you use Assisstive technology in your daily living?
Google Maps with the speech on is a lifesaver. I also have a small digital magnifier that helps with small print reading.

What piece of advice would you give to someone newly diagnosed? Or going through a deterioration in vision / or mobility? It doesn’t hurt to admit you need help.

Any advice you’d like to give to a person with sight / no disabilities? Never give up on your dreams, no matter how outlandish they may be.

Did you seek out any specialist services / charities to help you and your family deal with your situation?
I received help from Floridia Department of Blind Services and have taken advantage of mobility classes upon first moving down here from Ligjhthouse of Central Florida. When I was in college up In Rhode Island, I learned to accept my disability and the basics of self advocacy from Advocates In Action Rhode Island, a great non profit that helps people (mostly with developmental disabilities) learn that they can lead a meaningful life and have a say in their care plans. I owe my life to them, for without them, you wouldn’t be reading this now.

Where can people find you out in the world?
*Blog – Legally Blind Bagged
Legallyblindbagged.wordpress.com

*FaceBook- Legally Blind Bagged
https://m.facebook.com/LegallyBlindBagged/

Follow me on The Mighty
https://themighty.com/author/mandy-ree/

Anything you’d like to add my lovely?
On August 23rd at 4pn EST, I will be doing a live Q&A on the Mighty Facebook Page. I will also be speaking at the Advocates in Action Statewide Self Advocacy conference in Warwick RI October 27. More details will be shared on my Legally Blind Bagged Facebook page soon.



Thank you so much for participating Mandy, it was a very insightful read! I’m sorry to hear of the troubles you have faced due to your disability, and the lack of confidence that others have thurst upon you. It must be very disheartening! But good for you for powering through and proving how strong you are ! You are clearly very passionate about Disney and I hope your book goes well! Best wishes with it all, and keep in touch to let us know how it goes!

Please don’t forget to follow her links, and why not share the love? Leave her a comment, we would both appreciate it!

If you, or anyone you know, would like to take part in my Campaign, do not hesitate to contact me on the following:
Email:SassysWorld6@gmail.com
Twitter
Facebook

If you enjoyed this interview why not check out the others in the series so far?
Interview 1
Interview 2
Interview 3
Interview 4
Interview 5
Interview 6
Interview 7
Interview 8
Interview 9
Interview 10
Interview 11




Me, My Operation and I

I had a call Tuesday morning to let me know that my surgery would be the next day, no eating or drinking anything after midnight, I needed to arrive by 07:00 and I would be told where on the list I was for my operation.

Gary and I managed to get lost; we rocked up to the reception desk to ask for directions, unfortunately the lady sent us off in the completely wrong direction and we ended up on the surgical ward… Through the use of a map and correct directions from the nurses we finally found the right building!

We were told that I was the first patient on the surgery list, woohoo! We filled out the last remaining paperwork, and I got dressed into my gown and stockings, I looked very fetching I must say!
I was wheeled into a waiting area and left their for about 5 minutes before the anaesthetist came to get me. Gary came in with me and we met Mr Khan, the surgeon doing my operation.
It was the first time since my accident that i fully knew what had happened: I had a displaced fracture of my Tibia and Fibula; they had crossed over each other, and my Patella had shattered and fragments were floating about in my knee.
Mr Khan would be putting in metal plates, screws, rods and wires along with artificial bone to reconstruct the knee. Without complications this would take around 3 hours.

He explained that this was a very serious fracture and a complex operation; I tried to crack a joke but he just stayed stoney faced, awkward turtle moment right there!
Mr Khan also stressed to me that because of the trauma to my leg I would now have OsteoArthritis in the knee for the rest of my life.
*Lucky me; now i’ll have 2 types of Arthritis! I don’t do things in halves do i?* 😉
The anaesthetist was very chirpy and friendly, we were cracking jokes while i asked him how long he’d been an anaesthetist?

Ct scan of a fractured Knee, the knee is displaced and splintered into 3 parts.

Gary was very nervous and worried as this was the first time he has ever been to theatre before, I could tell, and tried to be enthusiastic and show I was relaxed.
I told him to give me a kiss and that I loved him, then I settled and said it’s fuzzy i’ll be asleep any second.

The anaesthetist was very kind, taking my oxygen mask off so Gary could kiss me one more time, at this point i’d already drifted off…

*****

I came round from the anaesthetic in the recovery suite, The room was big, bright, air-conditioned and I had a monitor strapped to me checking my OBs. There was the hum of the machines and the bubble of nurses chattering.
I started to wave my arm; being blind and having a dry throat it was the most logical way to get their attention. A second or so later, a nurse came across and asked how I was? There was a lot of head nodding and thumbs up, I was too woozy to talk.

And then the pain hit… *Wow this is really uncomfortable! But I guess this is normal?*
“Could I have some painkillers please?”
“Yes of course, what’s your pain-scale like, 1 being good and 10 being awful?”
“7,,71/2”

The more time passed, the more and more uncomfortable I became. It didn’t help that I was getting hot and sweaty and my nose was extremely itchy, I kept having to take my oxygen mask off, itch my nose and fiddle about with it to try and put it back over my face.Finally the nurse noticed the muddle I was getting myself in trying to put my mask back on and offer to put the line up my nose instead. The relief was almost instant, I started to cool down and my nose was less itchy!

I kept asking for more and more painkillers, each time my ranking rating higher than the last time.
“The pain really should be subsiding by now, where is the pain?”
“My leg.” “It’s like I can’t feel the circulation, my leg feels like it has 3 blood pressure cuffs on it at the same time.”
“It is normal to have leg pain after surgery, and they do tend to wrap it quite tight to stop swelling.”
“But this doesn’t feel normal.”
“Wiggle your toes for me,can you feel me touching your foot?”
“Yes.
“You’ve got full circulation, your leg should settle down soon, i’ll give you a little bit more morphine before we take you upstairs.”
“Yes please.””Can you call Gary please?”
*I need a wee, i’ll just think of that instead of the pain…*

***

“OK Sassy we’re ready to take you to the ward now.”
“OK good, is Gary there?”
“Yes he’ll be waiting for you on the ward.”
“Thanks for your help, bye, have a good day.
“You’re very cheery for someone who is recovering from surgery!”
“Am I, hmmm maybeI am!”

I just laid back and tried to relax and the porters took me to the ward.

“Sorry, she can’t be on this ward, we’re full.”
“Oh, they told us to bring her here.”
“Well i’m sorry, I don’t know why they would, they know we are full.”
Sorry about this Sassy.”
*Oh but I need a wee*
Hey, I have a bed, i’m fine.”

Back to the recovery suite…

“We have to wait here until they have a space for her on another ward.”
“Oh right, let me ring around and find out what’s happening.”
“How long am I staying here for? Can I have some more painkillers?”
“I’m not sure Sassy it shouldn’t be too long. And we can’t give you any more i’m afraid.”
*It’ll be good to finally be on a ward so I can go for a wee*

I didn’t have to wait too long.

“OK Sassy, you’ve got a space on the ward now.”
“Yay, is Gary there?”
“Yes he should be.”
“Oh good!”

***
X-ray of fractured knee in which you can see the bone cracked and displaced.

Small talk between Gary and I and the nurse introducing herself to me…

“On a scale of 1-10 how much pain are you in?”
“9, 91/2.”
“That’s pretty high…”
“Yes it’s been getting worse as time passes.” “Can I have some morphine please.”
“You’ll have to wait a while, we don’t have your notes yet.”
“Oh god I really need painkillers! I need to stretch my leg”
“I’m sorry there isn’t anything I can do until your notes arrive.”
“Oh my god! It’s like 3 blood pressure cuffs on my leg at once! This is agony!!”
“I need to stand up.”
“No you can’t stand up.”
“NO I NEED to stand up!.”
“No sorry I can’t let you do that i’m sorry, you’ve just had major surgery and I need to look after you.”
“Well let me stand up, it’s the only thing that helps, i’ve been having this pain at home but it’s intensified!”
“You’re not allowed to stand up and i’m not going to let you.”
*OK I officially dislike this woman, get her out my face*
“Can you go see if i’m allowed morphine yet?”
“Yes, I can go do that “

“Right she’s gone, help me get out of this bed.”
Long pause…

“Sassy you heard what she said.”
“Get me out of this bed now!!
*Gary doesn’t move but I do*
“I need to stand up, just for a minute. It’ll help release the pain, I know it will.”
“I’ve been explaining this pain to you over the last few days, and it’s completely intensified,why aren’t you listening to me?”
“I don’t want you to get hurt, or damage your leg.”
“I’m not going to get hurt, I just need to sit in the chair and pull myself up, and I won’t be putting weight on my leg.”
*Gary helps me get into the chair.
As I stand up, i’m in absolute agony, and have to breathe hard to not cry out.
Although it’s agony, it’s doing what I thought it would, and pushes the blood around my leg. The pain although intense starts to steady itself.
Once i’ve done all I can to release the pressure I move back onto the bed*
“I’ve got some morphine for you.”
“Thanks, can I go to the toilet please?
“You’re not allowed to weight-bare, but i’ll get you a bedpan.”
“What if you push me in a wheelchair?”
“”No, i’m not allowed to do that.”
“OK, i’ll have a bedpan then.”
At least 5 minutes pass…”I really need a wee, where is she?”
“I don’t know…”
“Can you check?”
“She’s with someone else at the moment.”
“Oh great, I hope I don’t wee myself!”
“OK, I have the bed pan, if you could just roll onto your side.”

I had already lifted my backside up and started pulling at y gown.
“Just lie down for me.”
“Oh, this is how i was doing it in the other hospital it’s easier for me.”

Fumbling with gown and getting frustrated

“Gary take this stupid gown off me.”
“Let me lower the bed for you.”
“No I don’t need it lowered?”

Gary undoing gown.

“Here, let me help you.”
“Please can you just leave us to it, I want this gown off and don’t feel comfortable getting naked in front of you.”
“It’s OK i’m here to help you.”
“Well I don’t want your help, can you leave please?””

She reluctantly exits the cubicle but constantly sticks her head in.

“Can you just leave me to it, you’re distracting me and I can’t concentrate”
“I need to make sure you’re OK.”
“My partner is with me, i’m OK.”

*This woman is absolutely useless, I don’t like her*

Even though i’m ready to burst, I sit there and, nothing…

“Have you gone yet?”
“No.”

Still nothing…

“How are you getting on?”
“I can’t wee…”
“Can I come in?”
“No.”

She comes in anyway…

“So you still haven’t been? You’ve been sat there over 10 minutes…”
“Can you just get out please?
“I just want to help you.”
“Just get out!!”
“There’s no need to be so rude!”
“Well you asked if you could come in and I said no! I need to do this in my own time stop hovering over me.”

Finally she leaves…

Still nothing…

Nope, nothing.
I try everything pushing, prodding, wiggling, and even getting Gary to rub my back with no avail.

Finally an hour later…

The tiniest trickle happens!!

“What?! I’ve been waiting all that time for that??”

But the relief is insurmountable.
*****

Right leg in a white cast from ankle to thigh

Lots of love, medication and a sandwich later, i’m finally relaxing as best I can.

The nurses do a change over, and it’s time for Gary to leave.
We say our goodnights and he helps me settle for the evening. I apologise for the outbursts and severe grumpiness, he accepts my apology and says he can tell how much pain i am in.

I didn’t get much sleep that night, mostly to do with the pain, but mores because my bladder decided to kick in and I couldn’t stop peeing like a racehorse until breakfast the next morning!




Please stay tuned for the final instalment of my accident and the chaos that ensues… 😉

The Joys of A&E

Gary and I headed off to A&E on Friday morning as previously discussed by the Doctors and ourselves in Malta.
We are extremely grateful to our friends for picking us up from the airport, and then kindly carrying me to the sofa! As I had been in a foreign hospital I had no wheelchair or crutches to aid me; only the people around me!

Thankfully A&e wasn’t too packed, so we didn’t have to wait too long to be seen. I was given a set of crutches and an appointment to the fracture clinic for Monday morning to discuss surgery.

And we were sent on our merry way.

*****
Around 5 AM Sunday morning I woke up in considerable pain, my leg felt like it was having the life squeezed out of it, I took some painkillers and by 06:30 things hadn’t improved, I was starting to seriously worry; I had no DVT injection since Thursday and I was beginning to worry there might be something sinister going on.

(Fondaparinux injection is used to prevent deep vein thrombosis (DVT; a blood clot, usually in the leg. It is given to those who have had a recent leg operation or have severely restricted movement in the legs from an accident.)
Gary and I went straight to A&E; I wasn’t seen by a doctor until 10:00.

I explained everything from my accident, handing over my discharge letter along with x-ray and CT scan, to the fracture clinic appointment, to the pain I was feeling, the Doctor did all the checks and said that I did have circulation flowing and there wasn’t anything to be concerned about. It wasn’t until I stressed that this pain had become increasingly worse daily that he decided to keep me monitored until I could speak to an orthopaedic doctor.
Gary and I made it clear that I was blind, but I don’t think this was passed onto the HCA taking my OBs; he just stood their silently waiting for me to hold my arm out and then finger so he could take my blood pressure and pulse…
Regardless of my sight loss I thought it was almost rude that he came into the cubicle without a word, moved about quietly and then expected to take my OBs in silence and stalk off again… There has been a change in the law that people with extra needs who attend NHS centres should be given notes/ leaflets/ medical information in a format preferred by the patient. So for me that would be; verbal communication as to who they are, what they are doing in the room, talking openly about my care, and any medical information to be given to me via email.
This was never discussed with me, but as it wasn’t exactly high on my priority list I decided not to mention it.

When my 4 hours in A&E were up; a nurse explained that I had filled my quota of A&E hours and I had to go elsewhere for monitoring and waiting to see the Doctor in charge of Orthopaedics.
Discussing with the nurse as she moved us elsewhere in the hospital it’s clear that the medical professionals are aggravated by the government putting this in place.
If I were to stay longer than my quota she would get it in the neck from her bosses!
How ridiculous is it that the government are more bothered about number crunching than patients and their welfare!

My family and I were put on a ward and told that they couldn’t give us a time, but the Doctor would be with us when he could.
We laughed and joked, and waited around for at least an hour and half before we began getting impatient. My Dad and Gary were giving us hangry eyes; so Mother and i sent them off to make us some breakfast sandwiches 🙂
Thankfully for us Gary and I live around the corner from the hospital so it was easy enough for Gary and Dad to pop home, make brunch and bring it back.
Sausage and bacon sandwiches with a cup of tea was just what we all needed! Thinking back now, it was very tasty and I was extremely grateful to the boys, even if it was more for their benefit than either mine or my Mum’s 😉

We waited for at least another hour before my Mother decided to go and investigate as to what was going on, she came across a bunch of nurses just sitting on their phones not doing any work!
Upon enquiring she was given an “we don’t know what’s going on”comment.
Mother didn’t take no for an answer and eventually we were told that the Doctor we were waiting on was in surgery and would see us when he was out…
Although annoying that we hadn’t been given this information before, at least we finally knew what all the waiting around was for!

Eventually we saw the Doctor. From the x-rays he had seen the fracture was severe and definitely needed surgery, but as the hospital couldn’t access the CT scans that i had brought over with me from Malta, he couldn’t make an informed decision of how to repair the leg properly.

CT scan give for more detailed information than an x-ray. I was told that I could possibly have the surgery as early as the next morning, so I was to prepare myself by eating and drinking nothing after midnight and I would get a phone call in the morning to let me know if I would be having surgery.
It was a long day; we didn’t leave the hospital until around 14:30 but at least we had cut out the middle man of going through this all the following day at the fracture clinic.:)
** * * *
I hope you haven’t had to attend A&e, but if you have, what were your experiences with it?



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