Welcome back ladies and gents to another #DisabilityQ&A. Today’s interview is brought to you by Angela. I have known her since the beginning of my blogging journey, and I learnt a lot from her about adrenal insufficiency, back when her blog was called Days In Bed.
I’m really happy she wanted to take part in my series, now she can educate you lovely lot on her condition, far better than I ever could.
Tell me about yourself
Hi ,My name is Angela Milnes. I’m 33 years old. I live in Lancashire, United Kingdom, I’m a full time mum and professional blogger.I love researching my family tree and finding bargains.
Now we know the basics, can we learn a bit more about you?
What is the medical reason you have a disability?
I have a diagnosis of Adrenal Insufficiency, Human Growth hormone deficiency and Chronic Fatigue Syndrome.
Have you had your disability from birth?
No I became unwell in 2013, a week after my wedding.
Do you refer to yourself as a person with a disability? If not, why not?
Yes. I am unable to do the same as a normal healthy person.
Do you tell others about your disability? Or do you prefer to keep that to yourself until you are comfortable with the person knowing?
Yes I tell people about my disability and health issues. I often share on social media and on my blog theinspirationedit.com I also have been published 5 times on The Mighty.
Do you use any mobility AIDS such as a wheelchair or walking stick?
My illness fluctuates and I have a wheelchair and a walking stick and my needs and abilities change from day to day.
If you could extinguish your disability, would you? – If not, please explain why.
Of course. It is not fun being unwell and feeling so sick and I would not wish it upon anyone.
For those who do not know much about your disability how does it affect your mobility?
Adrenal Insufficiency can make me feel sick and dizzy. I get weak muscles and sometimes I cannot stand or walk.
How has your disability effected you?
I can be isolated a lot when stuck in the home or bed bound and so I try to socialise via internet. This is my main source of socialising.
I can no longer exercise or do things like healthy people. I don’t walk my child to school as it drains too much energy and I have to limit and pace everything I do to manage myself the best I can.
Being unwell can make me feel anxious and upset, especially when I get really weak. I can get brain fog and feel confused and upset and that can lead to feeling stressed out.
Do you think your disability has made you who you are today?
Well it’s helped me to speak out and talk about my difficulties and become an advocate for health and disability. I think being unwell has also given me empathy for others and understanding. I have more sensitivity to others who have conditions as I know what it is like.
*Please give a positive example of how this has done so…
Well, I have a friend who’s daughter has Chronic Fatigue and I Understand what it is like and can relate to how hard it is for my friend as a carer for her child.
Is there a particular question you get asked often because of your disability? If so, please explain below.
Some people ask me when I will get better. I have a chronic condition and although there will be improvements in my health I will always have to manage and live with the health issues I have.
What are the positives of having a disability?
Well the one positive that came from my disabilities and health issues is my blog. I speak out about the condition and have built a small online space which I love to use. I don’t think I would have done this without having illness.
What are the negatives of having a disability?
There are many, the inability to do things I used to do and the way it impacts on my abilities as a mother.
What would you say is a difficulty for you being disabled?
Being able to go places on my own. I often need my husband with me incase I have an adrenal crisis.
As a person with a disability, what are the things you face on a daily that frustrate you?
*In your home
I get frustrated when I feel sick and too tired to do anything. I often want to be productive and have to take time out to rest.
*outside your home
Well I really don’t get out and about too much. When I do, I often get tired afterwards and suffer for it but some outings are worth it.
Are there any tips or tricks you use in daily life you’d like to pass on to another disabled person?
Just learning to pace and stop and rest when you need to. I think pacing and getting a good amount of sleep is really important.
What piece of advice would you give to someone newly diagnosed? Or going through a deterioration in vision / or mobility?
To learn what you can and instead of fighting the disability learn to adapt and live with it.
Any advice you’d like to give to a person with sight / no disabilities?
maybe just to be more understanding of chronic conditions. So many people say to me “it’s great to see you better” but the reality is i’m never really better, i’m just getting by.
Also I get nasty looks a lot when I park in a disabled park. Just because my condition is invisible does not mean I am not disabled.
Did you seek out any specialist services / charities to help you and your family deal with your situation?
Not really. There are not many groups for my condition in the UK but I found support and people with my illness on Facebook and that has really helped me to learn.
Where can people find you out in the world?
❤❤ Thank you so much for taking the time to be interviewed Angela! ❤ ❤
I hope that my readers got as much value as I did from your Q&A